We’ll write everything from scratch Question  Assignment Content Competency Identify ethical dilemmas encountered in professional nursing practice. Describe the ethical theories and principles influencing healthcare decisions. Explain the interdependency of genetics, genomics, and ethics in nursing care. Describe the principles of genetics and genomics. Differentiate the legal and professional policies influencing healthcare decisions. Design nursing care strategies that incorporate genetic and genomic risk factors. Comprehensive Case Summary-Ethical  social and Legal Needs of Patients with Positive Genetic Test results Student Success Criteria View the grading rubric for this deliverable by selecting the “This item is graded with a rubric” link, which is located in the Details & Information pane. Scenario As a case manager at your healthcare organization, you were asked to present at the annual case conference highlighting genetic and genomic nursing care strategies. The virtu

Comprehensive Case Summary-Ethical  social and Legal Needs of Patients with Positive Genetic Test results

Hello, and welcome to this presentation. This presentation will highlight the ethical, social, and legal needs of patients with positive genetic test results and explore the role of nurses in the comprehensive management of these patients. Our assignment writing help is at affordable prices to students of all academic levels and academic disciplines.

Introduction

Genetic disorders are a spectrum of disorders caused by gene mutations. Sickle cell anemia, cystic fibrosis, Down syndrome, and Huntington’s disease are some of the most commonly encountered genetic disorders (Angular et al., 2020). This presentation focuses on the comprehensive management of cystic fibrosis. The presenting patient case is a 45-year-old male with complaints of fatigue and cough. Assessment findings revealed a history of multiple pneumonic presentations that sometimes prompted hospitalization. Physical examination revealed digital clubbing. The family history of the patient was positive for cystic fibrosis. His father died of pneumonia attributed to pseudomonas colonization secondary to cystic fibrosis. The cystic fibrosis genetic panel test revealed the presence of mutations in the CFTR gene. The patient was diagnosed with cystic fibrosis.

Ethical Considerations

Comprehensive management of cystic fibrosis and other genetic disorders may sometimes present significant ethical issues. Genetic counselling, an essential care parameter in genetic disorders, may raise ethical concerns related to privacy protection and confidentiality. Clarke & Wallgren-Pettersson (2019) note that the overarching principle behind maintaining the confidentiality of an individual’s information, their risk of developing genetic disorders, carrier status, and family history is their vulnerability to social discrimination and stigma. It is thus important that a patient’s genetic information be kept confidential. The caregiver’s obligation to the ethical principle of confidentiality and their duty to protect the health of other involved family members often raises ethical dilemmas. This is because, in most cases, when a patient receives their genetic testing results, they are party to information that may directly influence the health of other family members. In such instances, caregivers are responsible for acting in the best interest of the patient and the patient’s family.

Ethical Theories

Confidentiality is a professional morality value governing medical decision-making processes. The ethical principle of confidentiality is supported by the theoretical postulations of utilitarianism. The Utilitarian theoretical approach distinguishes wrong and right by analyzing the outcomes (Vearrier & Henderson, 2021). The utilitarian justification of confidentiality is that this ethical choice produces the greatest good for the caregiver as well as the patient. Per the caregivers’ perspective, confidentiality is a demonstration of their intrinsic ability to respect their patient’s autonomy with a corresponding reward of pleasure, happiness, and self-worth. Patients also develop satisfaction with the care process as they feel respected and valued.

Related Legal and Public Policy

Confidentiality decisions are strongly embedded in the considerations of public policies and have legal precedents. The legal and quasi-legal standards on which confidentiality and disclosure of information are rooted are the codes of nursing practice and the privacy protection laws. Per the codes of medical practice, nurses and other caregivers have legal obligations to maintain the confidentiality of protected health information. The legal precedents of confidentiality are manifested by the Health Insurance Portability and Accountability Act (HIPAA) of the United States. Per HIPAA, patients maintain autonomy over their health information. Caregivers. are prohibited from disclosing this information without the consent of the patients. Notably, breaches in the legal and quasi-legal provisions often have legal consequences.

Interprofessional Care

Comprehensive management of cystic fibrosis and other genetic disorders utilizes the multidisciplinary team approach. The multidisciplinary teams involved include nurses, physicians, genetic counsellors, medical geneticists, pharmacists, and social workers. Nurses play a role in providing nursing care to the invited patients. The inclusion of physicians and pharmacists in this care approach is a result of the understanding that these disorders often have somatic presentations and physiologic deficit